Getting the results, after a trial ends

Many trials must publish a plain-language summary of what they found — even for people who already finished taking part. Here is what that summary is, and how to find yours.

You have a right to know what was found

In the European Union, the law requires the sponsor of a trial to publish a summary of the results written in plain language, usually within a year of the trial ending (a little longer for studies in children). Other countries are moving the same way, and many consent forms already promise this to you directly.

What it tells you — and what it doesn't

The summary covers the whole group of people in the study: what the researchers were trying to find out, roughly how many people took part, what happened overall, and the side effects that were seen.

How to find it

Ask the study team, when you join, how and when you will be told the results — it is a fair question at any point, not only at the start.

If you can't find it, or it seems overdue

It is completely fine to contact the site or study coordinator and ask directly. You do not need a special reason — wanting to know what happened is reason enough.